Raising Useless Children – A disaster of Helicopter Parenting.

My eldest daughter’s first year of secondary school included a residential outdoor education trip. She had already been on one in primary school at a similar centre so I wasn’t going to bother attending the parent’s information meeting. Until she came home with not only a list of things required to take but skills needed to be allowed on the trip, including:

  • Being able to butter her own toast
  • Cut up dinner
  • Pour herself a drink without spilling
  • Getting dressed by herself
  • Brushing her own teeth.

As with all comprehensive schools in Scotland, integration for students with additional support needs was policy (although these children never get the actual level of support required due to systemic underfunding). The school also had a unit attached for students with autism who may find a full day too difficult. I assumed that my daughter had collected the wrong form and that the list was to double check children’s support needs in order to ensure the appropriate level of staffing to ensure that all children could attend. I went along to the information meeting assuming it would be a waste of my time (since I’d sat through a similar one the year before).

I was wrong.

My daughter had indeed brought home the right letter. And, the list above: for children without any additional support needs.

 

Continue reading Raising Useless Children – A disaster of Helicopter Parenting.

Zadie Smith: why the focus on make-up ignores the massive elephant in the room

I was fortunate enough to get tickets to see Zadie Smith at the Edinburgh Book Festival this year, which is why I know the “Zadie Smith banned her daughter from wearing make-up” is utter bollocks. Quite how the person who spread this rumour managed to understand Smith’s comment as a ban is mind-boggling. I’m veering between two options: a) they are on the wrong side of dim; b) deliberately propagated this for click bait.

It is incredibly disappointing to see media who claim to be feminist calling out Smith without investigating the context in which Smith referred to make-up. She did not “ban’ her daughter from wearing make-up.  The statement below was in response to a question from the about raising children within the harmful culture of patriarchal standards that hold girls to unrealistic expectations of beauty. Smith used the issue of time as a way to explain to her daughter, in age appropriate language, how patriarchal standards negatively impact girls’ lives.

 

Continue reading Zadie Smith: why the focus on make-up ignores the massive elephant in the room

The Conservative Gendered Stereotyping of Children, Radical Feminism and transgenderism.

This is Part One of a series responding to the issues around transgenderism and the media representations therein.

 When my daughter was 3 she decided she wanted to be a mermaid for the ability to swim underwater. This lasted until she realised that mermaids do two things: swim and brush their hair. Understandably, this was deemed too boring. So, she became a mermaid superhero, which combined awesome swimming skills (and potentially a visit to Atlantis) with the ability to fly and read minds (and ignore her mother). Eventually this became a superhero mermaid rock star since I, in a moment of extreme unreasonableness, refused to let her dye her hair bright blue. (She decided her way around this was to become the lead singer of the Red Hot Chili Peppers as the band could veto my no blue hair rule, but that’s a whole different story).

 

Continue reading The Conservative Gendered Stereotyping of Children, Radical Feminism and transgenderism.

The final battle in the Wars of Best Parenting:

Slides.

Genuinely.

Slides.

Like this one:

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http://kinchinplaysystems.weebly.com/slides.html

I know this sounds utterly ridiculous. They are slides for children, but somehow they make the list of ‘The Great Parenting Battles’ (breastfeeding vs bottle feeding, working, disposable vs reusable nappies, Tom Hardy vs Chris Evans on CBeebies Bedtime Story*) on Mumsnet. There is the side who think any child who dares to try to climb up a slide is on a short road to juvenile delinquency, an ASBO, and a lifetime of petty crime. And, those who think that slides are meant for imaginative play. Not queuing in a line.

I genuinely had no idea that climbing slides was ‘bad’ behaviour in the UK until I joined Mumsnet. There are always threads by mothers complaining about other people’s children using slides in ways which are deemed ‘rude’. Obviously, there are differences between preschoolers on a slide and school age children. I’m just not convinced that 7 year olds need to queue to climb steps to use a slide. Or, that 10 year olds are incapable of being aware of their surroundings and sharing.

 

Continue reading The final battle in the Wars of Best Parenting:

Lice Are a Feminist Issue

Lice – that loathsome insect that mentioning turns everyone into hysterical head scratchers. Just typing the word makes me want to shave my head. Whilst scratching and googling illegal pesticides. Just in case.

I can’t adequately express how much I loathe lice – the hours of my life I have wasted combing through my children’s hair in a desperate attempt to find that one last louse who is on a mission to repopulate the universe (or just my kid’s head).

I have done all the treatments: vinegar (made the kids scream and me hungry), gin (made the neighbours look askance), olive oil (went every where), and the full range of “essential” oils from tea tree to peppermint. Mostly, they made the kids smell like they’d been lost in a bubble gum factory. I’ve wandered around muttering: lice don’t care if your kid’s hair is clean or dirty. I’ve tried every lotion and spray. I have memorised the NHS advice on how to treat lice and bought every type of comb going including one that supposedly killed lice with an electric shock. I’ve done it all and the only thing that works is spending hours combing through wet hair.

I celebrated the Christmas holidays by chopping off all of my children’s hair. I became that mother – the one who lost the plot. The thought of spending hours combing my children’s hair in a desperate attempt to find that one super-fertile, camouflaged louse was too much. I actually hacked off my daughter’s ponytail rendering her once waist-length hair into a bob around her shoulders.

It was Christmas and everyone was scratching. I couldn’t bear the thought of getting out the nitty-gritty comb. Again. Now, we’re all sporting short hair (some of us with less grace than others and some of us with straighter edges than others).

Most children get lice at some point in their lives, but it doesn’t matter how many times I read those official NHS guidelines about how, I still feel embarrassed when my kids catch them. There is a shame involved in being the mother whose children have lice. And, this is why lice are a feminist issue. It doesn’t matter how often you hear about equal parenting, it’s always mothers who end up responsible for lice.

It is mothers who are responsible for spending hours every week combing their children’s hair. It is mothers who are responsible for taking their kids to the hairdressers with the inevitable embarrassment of being sent packing when one louse pops out from behind the kid’s ear to wave hello. (And, why is it normally impossible to see them on your kids head but they turn a shade of glow-in-the-dark lime green with a penchant for the Macarena when in proximity of a hairdresser?)

Lice are a mother’s shame: if only they were a better mother; a more observant mother; one with hours of free time to comb through their child’s hair (assuming the child would sit still through this process happy as a lark).

Lice are just another form of wifework – one which women are shamed for performing and are then shamed for missing. Combing hair for lice is time-consuming and excruciating for both mother and child. It is also used as a way of shaming poor mothers. You see, white middle class children only get lice from one of “those kids”. These children are always the victims of lice infestation and never responsible for sharing the blighters with other children. Instead, we sit in judgment of bad mothers who don’t own a microscope they can jam their kid’s head.

I have yet to meet a father who spends his evenings combing through his kid’s hair. Or, a father sent home from the hairdresser in disgrace. It is not father’s desperately trying to pretend they didn’t see the louse which just plunked an “I am here” flag in the middle of their kid’s head.

Lice are a feminist issue because it is mother’s who are blamed for an infestation that is a pretty normal part of a kid’s life: like chicken pox, skinned knees and nose-picking.

The next time you see a child with lice-infested hair spare a thought for the mother spending her precious time and money desperately trying to eradicate the lice. Don’t judge. Just give a quick thanks that this time it’s not you. Because lice are definitely one of the worst bits of mothering and mothering is always a feminist issue.

 

Originally published in the Huffington Post on 15.1.15

A caesarean performed without consent

Originally published on a previous blog 2.12.13

As with everyone, I am horrified by today’s article by Christopher Booker in the Telegraph about an Italian woman, in the UK on business, who was forcibly given a caesarian section and her child taken into care.

A woman being given surgery without her consent is assault. It is that simple. Women are not incubators and any society which sees women as human would not be forcing surgery on a woman without her consent; never mind a surgery which results in a child being delivered. Taking the child into care, without the woman being able to instruct her own lawyers, is disgraceful and inhumane.

But, and this is a huge but, reading Booker’s article, I have more questions that answers. I understand that Booker is limited in what he can publish due to the fact that family courts are closed for the protection of the children. Taking this into consideration, Booker’s article is still low on details.

Don’t get me wrong, there are serious problems within child protection due to chronic underfunding, massive caseloads and staff not being given appropriate training in dealing with sexual violence, male violence, and victim blaming. This is clear from the Rochdale and Oxford grooming cases for a start – and the sheer number of children who are forced to continue relationships with abusive fathers. Yet, child protection is more than just social workers [who inevitably get a bashing in these cases], there are medical doctors, psychiatrists, police, teachers, community support workers and any number of court officials involved in the decision to remove children from the home. Our culture treats children as possessions and we pay a very high price for the damage we cause them. In this case, it is clear that the police and medical establishment were involved before Essex social services were.

These are the questions that first popped into my mind when I read the article last night:

  1. Why hasn’t the Italian government been fighting this? They are certainly not bound by UK laws on child protection which keep family courts closed. Why hasn’t the Italian government gone to the EU Human Rights court on behalf of their citizen?
  2. I do not understand why the family suggested that the baby be adopted, in America, by the aunt of the baby’s stepsister (and does Booker not mean half sister rather than stepsister? If we’re talking about kinship carers, you need to get the relationship right). This isn’t the closest of kinship ties and I do think sending the child overseas is a drastic response. Was there no family in Italy who could care for the child in order to allow the mother to continue her relationship with the child? I support kinship adoptions because I do think they are the best outcome in such circumstances but not if the kinship adopter lives on the other side of the planet. The whole point of kinship carers is to try to continue the relationship with the birth parents, if possible. How would this continue if the child was living in the US?
  3. What on earth does Booker mean by panic attack and “bipolar” condition? These are medical terms which have medical definitions. A bit more detail to make it clear wouldn’t go amiss here.
  4. I want to know why the caesarian was preformed. This is an incredibly drastic move which only takes place, within normal circumstances when the mother can’t legally consent, if the mother’s health was at risk. Having bipolar disorder does not put the mother’s health at risk whilst pregnant. If the hospital performed the caesarian for any other reason than the baby or mother being in immediate risk of death, then they have committed assault. I would expect the Italian government, on behalf of their citizen, to being taking the hospital trust to court over this.
  5. I don’t trust John Hemmings at all. The moment he gets involved in any case involving social services, my brain starts screaming ‘ulterior motive’. Hemmings is never involved for the best interests of the child; he’s all about the publicity.
There are obvious constraints on the publishing of this case but Booker’s article is too full of holes to make sense of. If this is a clear case of the assault of a woman, then the there are a whole lot of people who need to be prosecuted and both the British and Italian governments are complicit in this abuse.
Forcible caesarians are violence against women.
Removing a child from their mother because the mother is bipolar is violence against women.
A society which treats women as more than incubators and believes children are not possessions would invest more money and training in the police, education, health, social services and judiciary to ensure that all have more than adequate training to support women who need a little extra help. A society which cared would offer more support to a pregnant women with a mental illness [and here the Italian government is just as complicit]. This is why we are supposed to have a welfare state: to help those in need and not punish them for needing help.

UPDATE:

Essex County Council have released the following statement in response to Booker’s Telegraph article. The obvious holes in Booker’s piece are clearly answered below. I still think the child should have been returned to Italy, even if the mother could not care for her herself but the case isn’t quite as cut and dried as Booker suggests but then these things never are.

Essex County Council responds to interest in story headlined “Essex removes baby from mother”

2 December 2013

Key Dates

There have been lengthy legal proceedings in this case over the past 15 months.
  • Mother detained under Section 3 of the Mental Health Act on 13 June 2012
  • Application by the Health Trust to the High Court 23 August 2012
  • Application for Interim Care Order 24 August 2012
  • Mother took part in the care proceedings ending on 1 February 2013.
  • Mother applied to Italian Courts for order to return the child to Italy in May 2013. Those courts ruled that child should remain in England
  • In October 2013 Essex County Council obtains permission from County Court to place child for adoption

Context

The Health Trust had been looking after the mother since 13 June 2012 under section 3 of the Mental Health Act. Because of their concerns the Health Trust contacted Essex County Council’s Social Services.
Five weeks later it was the Health Trust’s clinical decision to apply to the High Court for permissions to deliver her unborn baby by caesarean section because of concerns about risks to mother and child.
The mother was able to see her baby on the day of birth and the following day. Essex County Council’s Social Services obtained an Interim Care Order from the County Court because the mother was too unwell to care for her child.
Historically, the mother has two other children which she is unable to care for due to orders made by the Italian authorities.
In accordance with Essex County Council’s Social Services practice social workers liaised extensively with the extended family before and after the birth of the baby, to establish if anyone  could care for the child:

UPDATE 2:

The judge’s statement has now been released and is available here.

This is the first part:

NOTE BY MR JUSTICE MOSTYN (4 December 2013)

Although no-one has sought to appeal the judgment dated 23 August 2012 during the last 15 months, or to have it transcribed for any other purpose, I have decided to authorise its release together with the verbatim transcript of the proceedings and the order made so as to inform and clarify recent public comments about this case.

It will be seen that the application to me was not made by the local authority or social workers. Rather, it was an urgent application first made at 16:16 on 23 August 2012 by the NHS Trust, supported by the clear evidence of a consultant obstetrician and the patient’s own treating consultant psychiatrist, seeking a declaration and order that it would be in the medical best interests of this seriously mentally ill and incapacitated patient, who had undergone two previous elective caesarean sections, to have this birth, the due date of which was imminent (she was 39 weeks pregnant), in the same manner.

The patient was represented by the Official Solicitor who instructed a Queen’s Counsel on her behalf. He did not seek an adjournment and did not oppose the application, agreeing that the proposed delivery by caesarean section was in the best interests of the patient herself who risked uterine rupture with a natural vaginal birth. I agreed that the medical evidence was clear and, applying binding authority from the Court of Appeal concerning cases of this nature, as well as the express terms of the Mental Capacity Act 2005, made the orders and declarations that were sought.

Although I emphasised that the Court of Protection had no jurisdiction over the unborn baby, I offered advice to the local authority (which were not a party to or represented in the proceedings, or present at the hearing) that it would be heavy-handed to invite the police to take the baby following the birth using powers under section 46 of the Children Act 1989. Instead, following the birth there should be an application for an interim care order at the hearing of which the incapacitated mother could be represented by her litigation friend, the Official Solicitor.

A How Not to Guide on Teaching Children Internet Safety

She said X was the closest park to her house

This is genuinely a line in a YouTube video called “The Dangers of Social Media” that claims to teach parents how easy it is for a ‘paedophile’ to groom a teenage girl: by identifying the neighbourhood she lives in to 30 million viewers.

In fact, the video reveals identifying details of three teenage girls, including street views of their homes and their parents’ faces. Rather than giving any information to help parents actually teach their children how to navigate social media safely, the video invites us to participate in the public shaming of these girls. We are allowed to watch the parents shouting at the girls but not actually engaging in why these girls arranged to meet a stranger they met online. If the aim was to highlight their lack of skills in navigating the internet, a more pertinent question was why no one bothered to teach them any. Why isn’t the focus on the parents rather than the children?

There are so many issues with this video that it’s hard to know where to start. The language itself is incorrect – the term paedophile has a specific clinical definition. The vast majority of child rapists are normal men who make a choice to harm a child; they have no pre-existing psychological condition.

The video also reinforces the ‘stranger danger’ myth. Statistically, fathers form the majority of perpetrators of domestic violence – whether this is physical, emotional and sexual abuse of the children themselves or witnessing the abuse of their mothers. Fathers, brothers, cousins, grandfathers, uncles, and stepfathers are far more likely to sexually abuse a child than a stranger. If we focus on ‘stranger danger’, we ignore the majority of men, and most child sexual abusers are male, who are actually a danger to children. This isn’t to say we pretend that strangers never harm a child; rather that we need to understand risk and help children develop the skills to keep themselves safe. Pretending that the only person who is a child rapist is a creepy man in a trench coat puts them at risk.

Rather than going for scare tactics like those in the video -having parents dress up in skeleton masks and drag their kids into a van- we need to teach children the skills to negotiate a world where a large number are at risk of experiencing domestic and sexual violence and abuse. We can start by using the appropriate words for body parts like vulva and penis.

Children also need to be taught about consent starting as toddlers. One easy way to do this is with tickling. If a child squeals no, stop and ask them if they want you to continue tickling. Then keep asking them. Another way is by telling children that they don’t have to hug or kiss anyone anyone that they don’t want to. Granny might want a hug but a child shouldn’t feel pressured or obligated to do so. Doing this teaches children that they have the right to bodily integrity and that their boundaries should be respected.

Children need to learn the skills to negotiate social media, including online gaming safely. Banning social media until the age of 13, as Facebook does, and then expecting children to be safe online is simply ridiculous. How are children meant to differentiate between unsafe and safe adults when their parents have 900 ‘friends’ on Facebook? If we depend on ‘stranger danger’ myths, do these 900 adults then become safe because their parents ‘know’ them? Equally, we give children mixed messages if we tell them not to talk to strangers but allow them uncontrolled access to X-Box Live. How are children meant to recognise that the older boy from down the road is a child rapist or that the really cool guy on Minecraft is a safe person if we don’t give them the tools to do so.

More importantly, shaming is not an acceptable teaching technique. Publicly shaming your child will not encourage them to have open and honest dialogue with you. It teaches children that their parents are more interested in the performance of ‘safety’ than their actual safety. It makes it impossible for children to ask for help when being bullied at school, never mind when experiencing abuse by a family member or a stranger they’ve met online.

Parents, and schools, need to take more responsibility for helping children develop the skills to negotiate social media and gaming safely, but, as Lynn Schreiber, an expert in social media, says about the video:

Scaring parents will not protect children. Blaming victims will not protect children. This video also reduces the eSafety message to one (fairly rare) danger, while ignoring the far more commonly occurring issues of children viewing violent or sexual content, cyberbullying, going viral, reputation management, and public shaming. Our children are growing up with this technology and need to be taught how to use it in a positive and sensible way.

The average age a child views porn online is between the ages of 9 – 12. Many children experience online bullying and harassment. Others live with domestic and sexual violence and abuse within the home. These conversations on personal safety, online and off, are very difficult but that is why they are necessary. We need to teach children the skills to deal with unsafe people and navigate the real world. In our global economy, the Internet is the real world.

This is what child protection should start with: teaching children their emotions are valid, that they have the right to say no, and that is completely unethical and unfair to publicly shame them on social media.

 

Originally published in the Huffington Post on 02/8/15.

An earlier version of this article appeared on Everyday Victim Blaming on 17/8/15

Woman banned from breastfeeding due to tattoo

A judge, Matthew Myers, in Australia banned a mother from breastfeeding her 11 month old child due to concerns about her possibly contracting HIV or another blood born virus after getting a tattoo. Thankfully, the ban was overturned by an emergency Appeals Court decision, but the implications of such a decision on women’s bodily autonomy are incalculable.

The risks of transmission of HIV or other blood born viruses from a tattoo at a licensed tattoo parlour are minute. Women are far more likely to contract these viruses from a partner who has sex with other women whilst she is pregnant or breastfeeding. There will never be a call banning men from having sex (or raping) their pregnant or breastfeeding partners in case they pass on a blood born virus. Frankly, the biggest danger to a foetus or a breastfeeding infant is domestic violence perpetrated by the father. The criminal justice system consistently underestimates, minimises and ignores this evidence-based risk to infant and mother health.

Interestingly, all the media coverage I read on this judgment focused on the issue of breastfeeding but there is a much bigger problem than a judge who bans a mother from breastfeeding based on a tattoo. The reason behind the ban was the fact that the mother had been diagnosed with postnatal depression and the judge felt this negated her ability to mother. The judge was looking for an excuse to interfere with mothering. Myers made the suggestion of a ban during a custody hearing. He couldn’t use the mother’s mental health to ban breastfeeding so he used the tattoo instead.

This was a considered attack on a woman’ ability to mother her child using every excuse possible to break the bond with the child. It’s pretty clear this judge believes fathers’ ‘rights’ to own their children supersedes the rights of the child and the mother. A judge who goes out of his way to research the minute risks of breastfeeding to prevent a mother from feeding her child is not someone who should be allowed to proceed over custodial agreements. This judgment had nothing to do with the child’s health and everything to do with the judge’s prejudiced beliefs about mothers with postnatal depression.

My Life with Fibromyalgia

I woke up one morning and my leg didn’t work. I stood up then fell over.

I was 14 years old and I couldn’t stand up by myself. My leg didn’t hurt. It just wouldn’t bear my weight. I was living with my father at the time and had to call my mother to come and collect me. We spent the morning at the hospital . In between the x-rays and blood tests, I got to have a conversation with an utterly bemused police officer who was trying to interview some teenagers who had been in a car accident. Trying to convince him he was in the wrong room helped pass the time at least.

In the end, I was told I had had the flu and that the virus had attacked the liquid in my hip socket resulting in the bones grinding against each other causing permanent damage. I don’t remember having the flu, just a runny nose, however the blood tests showed influenza so influenza it was. I only stayed on crutches a few days. I should have stayed on them for a few months to let my hip heal, but when you’re the class victim of bullying an imaginary disease doesn’t exactly improve your street cred.

Whether or not this is when I developed fibromyalgia is open to debate. Some medical professionals say yes and others say no emphatically, my favourite doctor takes a “who the fuck knows” approach to it. I did remain asymptomatic for about a decade after. When I got sick, my body took longer than others to heal  – a frequent indicator of fibromyalgia – something that did not make me popular with teachers. And, Mr Stewart, I do still remember you insinuating I was faking illness to the rest of the kids in the class. That really helped with the bullying issue.

I was relatively healthy though. I had my first daughter when I was 19 and managed to get honours in two undergraduate degrees and a masters degree as a single parent. It wasn’t until I moved to Edinburgh to do a PhD that the symptoms  got worse. My right leg collapsed again and I struggled to walk. I was sent to a neurologist and an arthritis specialist. For over a year, I was treated as though I had arthritis and used crutches or a cane to walk. This is the exact opposite of the treatment recommended for fibromyalgia. I gained weight because I couldn’t walk. I failed my PhD because I couldn’t work: I was exhausted all the time and I started losing words.

Then I got pregnant. Pregnancy and fibromyalgia are not the best of buddies. My asthma resulted in hospitalisation. I had constant nausea and migraines. These culminated in post-natal depression which went undiagnosed for years. My baby was not a sleeper making the exhaustion and depression a whirlwind of hideousness. I was so sick for so many years that I have lost huge chunks of time.

On the positive side, I haven’t had real trouble with my right hip for years. I can predict the weather depending on how stiff it is but I can walk. My body has compensated in other areas: migraines at the base of my neck, excruciating pain in my left shoulder, pain in my right arm and elbow, migraines in my right eye. I also have fibro fog, aphasia, anxiety, depression, inability to control my body temperature, and sleep deprivation. Fibro fog effects my short-term memory, my language skills (hence the typos), and ability to communicate. I have huge pauses in my sentences and sometimes I forget what I was actually trying to say.

These are the medications I’m on for good days:

  • multivitamin
  • Vitamin D
  • B12
  • B6
  • iron fortified water supplement
  • amitriptyline
  • citalopram
  • paracetemol
  • soluble aspirin
  • temazepam

On the bad days nothing works.

I’ve had fibromyalgia since I was 14 years old. I lived most of my life with a disease that no one understands the causes of or how to treat it successfully – never mind cure it. I live everyday with exhaustion, anxiety, depression, and extreme physical pain.

And, I’m one of the luckier women diagnosed with fibromyalgia. Most women have it much worse than I do.

This is my lovely friend Cath’s experience of fibro. I also wrote about feminist mothering whilst living with fibromyalgia.

Feminist Mothering with Fibromyalgia

I have fibromyalgia. I rarely admit to having it in public. If people ask why I look exhausted or am limping or struggling to use words, I say I have migraines. People have sympathy for migraines. They know it means extreme pain and sensitivities. When you say, “I have fibromyalgia” the response wavers between “I have a sore knee too” or “I’ve heard of that. My third-cousin twice-removed, next-door neighbour’s parakeet’s beautician has it and they got to go on disability for life.” Neither response makes it possible to explain what fibromyalgia does to your body.

Fibromyalgia has been called the “aggravating everything disorder.” I cannot control my body temperature. It doesn’t matter what the weather is like outside, my body runs on its own internal thermostat which is, inevitably, wrong.  I’m the one in the school playground in a t-shirt in the middle of winter and a hoodie on the hottest day of the year. I am also light sensitive, which means I’m also the one in sunglasses in the rain. My biggest ‘aggravator’ trigger is noise. When it is bad, the noise is so over-whelming that I can’t differentiate sound. Everything is extreme. I wear headphones to drown the noise out.

My immune system goes on strike regularly and a mild runny nose can result in my being in bed for a week. The last time I had the flu, it took nearly 6 months to recover properly. I get every bug going and, sometimes, it feels like I am always sick. We won’t discuss the side effects of the irritable bowel syndrome that co-exists with fibromyalgia.

A Facebook meme a few months ago made it clear: “my pain is not like your pain”. I have pain everyday – sometimes it’s manageable with painkillers and heat pads and sometimes its not. Sometimes I can’t turn my head because the muscles have seized. On more than one occasion the pain at the base of my skull has been so severe that piercing the back of my neck with a knitting needle didn’t seem like too bad an idea.

I’ve been really open about how hard it is as someone who loves writing to be unable to put my thoughts out coherently: that what ends up on the paper isn’t what was in my head because of the way the fibromyalgia has effected the ability of my brain to communicate clearly. It’s also affected my ability to speak since I lose words and have huge pauses in between words (that I don’t realise are happening). I also find it difficult to process what is being said to me when tired: I know people are talking but I can’t hear the actual words and, even when I can hear some of the words, my brain can’t actually process the message. When it’s this bad, the only thing I can do is nap. This isn’t exactly conducive to being a writer.

It is the fatigue that is the worst symptom. Sleep deprivation is classed as a form of torture for a reason. I am often in a severe state of exhaustion. I can’t sleep so the pain increases and because of the severity of the pain, I can’t sleep. So, I have depression as well. The depression and severe pain require long-term medications, which result in weight gain. Weight gain makes it harder to exercise and the circle continues.

Obviously this pain and exhaustion impact on my daily life, but it is my mothering where it impacts the most. Living with fibromyalgia makes mothering nearly impossible. I can cope on school days when the pain is in a ‘good’ phase because I can nap during the day. Weekends are more difficult. I cannot manage the day without a nap that means I have to plan my time with my daughter around my sleep schedule. It is even worse when the pain is severe or I have a cold.

I have two daughters. My eldest was 9 nine before I was diagnosed with fibromyalgia. I used to take her to castles, the zoo, and to the beach all the time. We would walk for miles in the woods, scramble up hills, and go camping. With my youngest daughter, walking three blocks to school can result in a four-hour nap. Camping outside is a no-go since tense muscles and pain don’t respond well to sleeping on the ground – and this is without dealing with the issue of my inability to control my body temperature.

How do you explain to a young child that the reason you can’t listen to their story is because the distortion in your ears is so intense that you can’t actually hear their words? Or, that the much promised trip to the zoo is impossible as you can’t walk?

The guilt is immense.

The guilt is not improved by media constructions of the “good mother”. How many news articles are written about children watching too much television or spending too much time on an iPad? Television fetes mothers who bake cupcakes, run marathons, and volunteer for the PTA. When they only thing you are capable of on a bad day is making a packed lunch, the myth of the SuperMom feels like an extra massive kick in the teeth. To be a mother with fibromyalgia is to be a failure.

Today is Fibromyalgia Awareness Day and I’m having a relatively good day. I have time for a nap before collecting my daughter from school and I managed to get some work done. I’ve balanced the need to pay my rent with caring for my child. Most days aren’t this good and, even if they were, it wouldn’t change the stigma of being a disabled mother. Or, erase the guilt for not being a great mother.

In child protection, the term ‘good enough mothering’ is used to describe women with multiple support needs who have children – whether these needs involve substance use, alcohol dependency, mental illness or trauma. This is what mothering with fibromyalgia is: good enough mothering. It’s just not that easy to remember this when faced with a disappointed child who only wanted to visit the zoo.